*The IAA post news regarding autism, the information posted is not supposed by the IAA. We ask that individual’s study for themselves before adopting any information.*
September Advocacy: National Suicide Prevention Month
“This September, we highlight National Suicide Prevention Month, Anti-Bullying messaging, Hispanic Heritage Month (9/15-10/15), Training and Resource Center promotion, and featured Autism Society resources.” Click on the link below to learn more.
Autism Parenting Magazine
Scott Garners article “How the Different Parts of the Human Brain Affect Individual’s with ASD” will be published in the next months issues of EC Paediatrics! Check out the link to learn more and get your copy of the Autism Parenting Magazine!
How the Different Parts of the Human Brain Affect Individual’s with ASD
Scott Garners article “How the Different Parts of the Human Brain Affect Individual’s with ASD” will be published in the next months issues of EC Paediatrics!
Breakthrough AI Predicts Early Autism With Surprising Accuracy
“Researchers at Karolinska Institutet have developed a machine learning model, AutMedAI, capable of predicting autism in children under two with nearly 80% accuracy, using a set of 28 parameters easily gathered before the age of 24 months.”
The Arc of Indiana
FSSA is continuing its series of biweekly webinars for individuals on the Traumatic Brain Injury Waiver or transitioning to the Health and Wellness Waiver. The webinars take place from 3 – 3:30 p.m. EDT. Registration is not required.
Autism Society – Kevin and Avonte’s Law
Kevin and Avonte’s Law honors the memory of Kevin Wills and Avonte Oquendo, two boys with Autism who tragically perished after wandering away from supervised settings. The law aims to create safer communities for people with Autism, other developmental disabilities, and forms of dementia by providing grant funding to local agencies.
The Autism Society of America provides training and technical assistance to the sites that receive grant funding through the Kevin & Avonte grant program in collaboration with the International Association of Chiefs of Police (IACP) and The Arc’s National Center on Criminal Justice and Disability® (NCCJD®).
Autism Parenting Magazine – Sleeping on the Floor
Jeremy Brown’s article explores potential sensory and comfort causes behind sleeping on the floor, risks to note, and provides gentle solutions like weighted blankets and sensory sheets to help shift sleep back to beds for improved rest.
Autism Parenting Magazine – Visual Schedules
Structured routines and clear expectations reduce anxiety for autistic students. Visual schedules are invaluable tools that provide visual representation of daily activities, boost confidence, and support autonomy.
The Arc of Indiana
Reminder: FSSA announced in January that waiver members who receive attendant care provided by a legally responsible individual would need to transition to an alternative provider or to Structured Family Caregiving by July 1. In order to have new service plans approved by July 1, those plans must be developed with your care manager, who will then submit it to the state, by June 15.
FSSA is hosting bi-weekly webinars regarding the transition of the A&D Waiver to the H&W Waiver for individuals 59 years and younger, effective July 1, 2024. Each webinar will take place from 3:00-3:30 p.m. ET. Following are links to join a webinar and webinar recordings. Registration is not required.
Autism Parenting Magazine – Elopement Strategies for Autistic Individuals
Check out Scott Garner’s latest article in Autism Parenting Magazine. He shares his tips and tricks on how to manage or prevent an elopement situation if your autistic child wanders away.
Shamieh Law – ADHD And Driving
ADHD is a neurodevelopmental condition associated with inattention, hyperactivity, and impulsivity. These symptoms put ADHD teens and adults at heightened risk for motor vehicle crashes. Researchers have found that those with ADHD are more likely to become distracted, which leads to preventable car accidents. In the interest of public safety, Shamieh Law has compiled this guide to ADHD and driving.
Autism Parenting Magazine – Dealing with Sensory Issues in Public
Every parent with a child on the spectrum can vouch for me when I state, “going out in public is a challenge.” Transitioning from the house to the car is your first challenge. Then the challenge shifts to dealing with the sensory problems of the new place upon arrival.
Sensory Fun and Playroom
Christiane Rogers has a passion for working with children with disabilities. In fact, she’s a parent of a child with disabilities. When he was young, her son was diagnosed with Auditory Processing Disorder (APD) which causes a disruption in the way an individual’s brain understands what they’re hearing.
The Arc of Indiana
With changes coming to the Health & Wellness (currently Aged & Disabled) and TBI Waivers, many families have questions about Structured Family Caregiving (SFC). We hosted two Ask The Arc webinars to share information on this important issue.
Autism Research Institute
Today, advocates worldwide are observing World Autism Awareness Day, aimed at increasing knowledge about autism and encouraging early screening, diagnosis, and intervention. World Autism Awareness Day is also an opportunity for our community to bring important issues to the general public’s attention.
The Arc of Indiana
With changes coming to the Health & Wellness (currently Aged & Disabled) and TBI Waivers, many families have questions about Structured Family Caregiving (SFC). We have scheduled two Ask The Arc webinars to share information on this important issue.
Autism Society – 30 Days of Autism 2024
The Autism Society of Indiana invites you to #CelebrateDifferences during April’s Autism Acceptance Month!
The Arc of Indiana
Applications are now open for Erskine Green Training Institute’s Camp EGTI. The deadline to submit applications is May 1, 2024. Camp EGTI is a two-week camp for individuals 18-22. The focus is TRANSITION – improving skills to assist with the transition from school to adulthood.
Autism Society – 30 Days of Autism 2024
The Autism Society of Indiana invites you to #CelebrateDifferences during April’s Autism Acceptance Month!
The Arc of Indiana
March is Developmental Disabilities Awareness Month and we’re so excited to share it with you! The theme this year is A World of Opportunity. These may be opportunities for fun, opportunities for relationships, opportunities in education, opportunities for toddlers and infants, opportunities for activism and advocacy, opportunities for travel, opportunities in employment — they’re the opportunities to live your best life and to achieve your dreams! This is YOUR world — a world of opportunity!
Autism Parenting Magazine – Check Out This Upcoming Issue!
Be sure to watch for the upcoming March Issue of Autism Parenting Magazine, where Scott Garner from the Indiana Autism Alliance will be showcasing an insightful article on elopement and autism safety. Subscribe today to receive your copy of the magazine.
The Autism Beacon
Many children with autism experience challenges with social skills including communication, social interaction behaviors, emotional regulation, engagement, and simply meeting other peers with similar skills or interests. In order to better meet the social needs of our learners, Lighthouse is now offering social skills groups at select center locations including our Davenport, Clinton, North Liberty, and Marion centers (Iowa center locations).
The Arc of Indiana
Last week was a busy week at the Statehouse as we move into the latter half of the session. There are still rumblings about the legislative session ending a week early on March 8. There is a lot of work to do until then.
The Arc of Indiana
Discussions continue at the Statehouse and executive level about the December Medicaid forecast, the anticipated shortfall of nearly a billion dollars, and proposed changes to Medicaid Waivers. Many legislators are concerned about the proposed changes and want more transparency about why the shortfall happened and how the proposed changes will negatively impact families. We continue to work with all stakeholders to see what alternatives can be proposed.
HANDS in Autism
The HANDS 14th Annual Autism Art Expo is swiftly approaching, and we are currently accepting artwork from all those interested in submitting creations. This year’s event is scheduled for April 18th and 19th. Artists who would like their artwork to be considered as part of this year’s logo will need to have their submission to us no later than February 28th.
The Arc of Indiana
The passage of HB 1380 is a major victory for families whose students receive special education services. This bill places the burden of proof in due process hearings on the school rather than the parent. It also provides that schools cannot require that a parent or an emancipated student enter into a nondisclosure, nondisparagement, or confidentiality agreement.
Autism Society
Our mission at the Autism Society of Indiana is to create connections, empowering everyone in the Autism community with the resources needed to live fully. We are seeking enthusiastic individuals that would like to help us continue building community all throughout Indiana. Students, caregivers, family and friends of all ages are welcome to join.
My Autism Ally
We’re starting off 2024 with a training opportunity. Join us via Zoom as we learn more about SafeinHome’s Remote Support Services Grant Program. Paula LeMaster, regional consultant for SafeinHome, will be presenting on Thursday, January 11th from 6:30-8pm during the Allen County Autism Support Group meeting. She will be discussing their Remote Support Services Grant Program which has no financial impact on your waiver budget.
The Arc of Indiana
Last month, The Arc of Indiana and the Self-Advocates of Indiana held our annual Impact Awards Celebration. We are highlighting our fantastic award recipients over the next few weeks.
Autism Research Institute Newsletter
Rates of “school distress”—or significant emotional distress related to attending school—are significantly elevated in children with autism spectrum disorders (ASD), according to a new study from the United Kingdom.
HANDS in Autism E-Newsletter
To assist you in preparing for your next patient on the autism spectrum, we’ve compiled a useful resource that provides strategies for communication, addressing sensory issues, and facilitating medical procedures.
Arc of Indiana
Are you and your family up to date on vaccines? COVID, flu and RSV vaccinations are recommended! Find information and vaccine locations at coronavirus.in.gov/vaccine.
Arc of Indiana
If you or your child receives government benefits, including Medicaid, SNAP, and WIC, or your household income qualifies you, you can receive a discount of up to $30/month and a discount of up to $100 for a qualifying device.
Autism Research Institute
By providing access to cutting-edge research, this e-newsletter aims to empower healthcare professionals in their work with patients on the autism spectrum. Ultimately, it strives to improve the quality of care and support for both children and adults diagnosed with this condition.
Autism Society
In this issue of Capitol Connection, see an update on the continuing resolution that is headed for the President’s desk, new bills introduced related to respite care and education, $200 million in funding for housing announced, an opportunity to provide comments on sub minimum wages, and more.
The Autism Beacon
Lighthouse Autism Center is opening our first location in Omaha, Nebraska! Omaha is located on the Missouri River, close to the Iowa border. Our new center is preparing to open, early 2024 and will feature beautifully remodeled spaces to promote natural and play-based learning. Omaha Autism Center will provide services to over 25 families and create over 35 new jobs in the area. We cannot wait for you to see it!
CIP Application Deadline November 15th, 2023
We know that your family’s educational needs are of the utmost importance. Finding a place that “gets” your young adult can be a life-changing experience. As the year comes to an end, it’s time to take steps toward determining your future goals and plans.
Special Needs Living
Special Needs Living Magazine Parent & Caregiver Empowerment Day – Sat, Nov 11, 2023, 1-5 PM at White River Christian Church. You don’t have to be in a current transition but planning for a future transition can save you a lot of time and make for a smoother transition!
Indiana ACT for Families – Press Release October 2023
INDIANAPOLIS, IN – Today, Indiana ACT for Families released a detailed analysis that has found significant flaws in the methodology used by the Holcomb administration to justify the cuts to ABA Medicaid reimbursement rates.
Lighthouse – The Autism Beacon E-Newsletter
Lighthouse Autism Center is now offering autism evaluations for children 2-6 years old. Appointments are available at every Lighthouse location. Children with autism often show signs in infancy but may not be diagnosed until much later.
The Arc of Indiana
The Arc Master Trust will celebrate its 35th anniversary on October 24th and we’re taking a look back to share some of the trust’s history. Martha Perske was renowned for her pencil drawings of persons with disabilities that were used in books written by her husband, Robert Perske, a well-known disability rights advocate.
HANDS in Autism
Are you seeking ways to expand your awareness of valuable community resources while learning to connect with them for support? Our HANDS: Developmental Disabilities & Autism ECHO: Individuals & Caregivers Series, Circle of Support Sessions focuses on these topics and is available to:
Individuals with Developmental Disabilities
Community & Medical Providers/Professionals
Family Members & Caregivers
Educators
But they are beneficial for everyone!
Autism Parenting Magazine
In our December issue of Autism Parenting Magazine, we cover the topic of:
✅ Building Life & Social Skills
✅ Helping Kids Into Independent Living
✅ Autism Guardianship and Alternative Options
for children on the autism spectrum.
Lighthouse – The Autism Beacon E-Newsletter
After years of searching for a space to expand, Lighthouse Autism Center is pleased to announce a second location in Warsaw, IN located at 109 E Winona Ave in Warsaw, Indiana. Our Winona Lake center will feature beautifully remodeled spaces to promote natural and play-based learning. This expansion will provide additional services to over 25 families and create over 35 new jobs in the Warsaw area.
Indiana ACT for Families
This week, the Indiana ACT for Families coalition is delighted to feature Natasha Navas from Westfield, Indiana. She is a mother of a 6-year-old with Autism Spectrum Disorder (ASD) who was inspired to begin a career as a Registered Behavior Technician (RBT) for Applied Behavior Analysis (ABA) therapy after seeing her son’s dramatic improvement.
The Arc of Indiana E-Newsletter
We have been introducing our advocacy fellows over the past few weeks. Now, we are excited to announce the next phase of the Advocacy Leadership Network program. We need you!
National Autism Association
NAA’s programs provide tangible and meaningful resources directly to families, individuals, caregivers, clinicians, educators and first responders.
Psychology Today
‘If you had asked me at the time why I was making plans for autism testing, I wouldn’t have been able to give a truthful answer. I didn’t truly understand the reasons myself. Instead, I made up an excuse to tell people: “A correct diagnosis will help my bipolar disorder treatment.” Although true, it was not my driving motive.’
Autism Crisis Intervention Training Held For Law Enforcement in the Upstate
When experiencing a crisis, a person with autism may not react as expected. That’s the reason several law enforcement agencies attended a special intervention training in Spartanburg on Wednesday.
MetroHealth
A collaborative effort to improve the outcomes for youth with autism spectrum disorder (ASD) transitioning to adulthood has been awarded a total of $1 million over the next three years from the Cleveland Foundation. The grant will help to support the work of a three-year pilot in which The MetroHealth System, Autism Speaks and Milestones Autism Resources will partner to build a model of coordinated medical, behavioral and social transition planning that can be scaled and replicated in other locations, within Ohio and beyond.
CBS Indy News
More than five million adults in the U.S. have autism spectrum disorder, according to the CDC. It’s a life-long condition and for many adults will lead to on-going services and support. At the corner of 6th and Morton Street in Bloomington, you’ll find CIP or College Internship Program.
Lighthouse – The Autism Beacon
Lighthouse Autism Center is now offering autism evaluations for children 2-6 years old. Appointments are available at every Lighthouse location. Children with autism often show signs in infancy but may not be diagnosed until much later. Early signs of autism in babies or toddlers often go unrecognized, simply because parents or caregivers may not know what to look for. One of the most important things you can do for your child after birth is to learn the early signs of autism. Recognizing the initial signs of autism can lead to an earlier diagnosis which is needed for early autism intervention.
The Arc of Indiana E-Newsletter
The Arc of Indiana has launched a new program, the Advocacy Leadership Network, which will work to build a network of at least 200 people across the state to advocate for the issues important to people with intellectual and developmental disabilities and share their experience to make a positive difference in the lives of people with disabilities.
Autism Beacon
Each May, Better Hearing & Speech Month (BHSM) provides an opportunity to raise awareness about communication disorders and the role of ASHA members in providing life-altering treatment. For 2023, our theme is “Building a Strong Foundation.”
Special Needs Living June 2023 Issue
Join us this Summer for a variety of events. Check out our June issue to learn more about how you can get involved!
HANDS in Autism
Join us this Summer for a variety of events and online sessions! Get 50% off our Summer Intensive Training for School & Community Service Personnel. Use HANDS50 when registering to get this promotional offer! Don’t miss this special offer!
The Arc of Indiana E-Newsletter
Join us on Wednesday, May 17, 12:00 p.m. EST. for our next Talks with The Arc Trust webinar. We will be focusing on understanding income and resource limits to obtain or maintain government benefits, and how a special needs trust can help maintain benefits.
Register for this and future webinars at: Talks with The Arc Trust.
The Arc of Indiana E-Newsletter
Don’t miss our next Ask The Arc Webinar, Waiver Transition & Redesign Update, taking place Thursday, May 11, 6:00 p.m. EST. Cathy Robinson, associate director, Division of Disability and Rehabilitative Services, will share important information about upcoming changes to Indiana’s Medicaid Waiver program, including moving the Aged and Disabled Waiver from the Division of Aging to DDRS, for people under the age of 65.
Autism Science Month
Over the past decade, many studies have documented substantial impairments in the gastrointestinal (GI), immunological, and metabolic systems of individuals with autism. Although this is well known among researchers in the autism biomedical field, many other professionals have yet to acknowledge the high rate of these medical comorbidities.
Autism Parenting Magazine
A new study performed by the CDC has revealed that, in 2020, the overall ASD prevalence was 27.6 per 1,000 (one in 36) children aged 8 years and was 3.8 times as prevalent among boys as among girls. Not only were the latest statistics shocking in the sheer increase since the last study, they were also conducted in 2020 – a year when many services were shut down due to COVID-19.
A watershed moment…
It led us at Autism Parenting Magazine to dig deeper into the statistics and the demographics of the autism population.
Here is what we found:
31% are considered to have an intellectual disability.
25-35% children with autism are considered non verbal
38% have seizures
40% have anxiety
53% have sleep issues
49% are likely to engage in elopement (running away)
Are 4x more likely to suffer from Gastrointestinal issues
Are 40x more likely to die from preventable injuries
37% of caregivers use ABA
22% of caregivers have used CBD with their children
Most kids are diagnosed after the age of 4
Boys are four times as likely to be diagnosed than girls
Only 14% of adults with autism have paid jobs in a community setting
27% of autistic adults live in a group home
73% of families with autistic children reported that they would be more likely to travel if they could access more information about travel accommodations and resources for families with special needs
Here we are talking about a very diverse subsection of needs and characteristics from mainstream ABA therapy right through to nutritional supplements and sensory friendly spaces.
If you have products or services that can help the autism community address any of these challenges, please get in touch today to find out how we can help you reach our audience.
All the best.
Mark Blakey
Indiana ACT for Families
Indiana is a national leader in autism care, providing life-changing access to diagnostic and therapeutic care for children with Autism Spectrum Disorder (ASD). But families and providers are getting concerned that the Holcomb administration may soon cut Medicaid funding for ABA therapy – the most scientifically validated therapy for people with autism – as part of their plan to reduce Medicaid expenditures.
The Arc of Indiana E-Newsletter
Last week three of The Arc of Indiana’s priority bills passed unanimously out of committee. These bills now head to the Senate Appropriations Committee as each require state funding to implement. To learn more about these bills and what this means for our community, check out our E-Newsletter.
Autism Research Institute
With Autism Awareness Month approaching, ARI’s staff is busy working on a number of initiatives. These include sponsoring our annual, three-day in-person think tank, releasing an online program to help parents and professionals understand and support self-harming behaviors, and premiering ARI’s National Autism History Museum.
My Autism Ally
To celebrate Reading across America and Dr. Seuss’s birthday, we are once again partnering with Purdue Fort Wayne School of Education to host a sensory friendly Dr. Seuss Party and you are invited to be part of the fun! The focus of the event is to celebrate reading, have fun with crafts and games and get valuable information about resources in our community. This event is FREE . Join us on Sunday, March 19th at the Walb Student Union Classic Ballroom on the PFW campus- 2101 East Coliseum Boulevard Fort Wayne, IN 46805 .
The Arc of Indiana E-Newsletter
Our Talks with The Arc Trust webinar series takes place at noon on the third Wednesday of each month. Click here to register for our March 15th webinar where Sara discuss third party special needs trusts – trusts funded by someone other than the person who will be the beneficiary of the trust, like The Arc Master Trust I.
Indiana ACT for Families
The Indiana ACT for Families coalition added four new member organizations this month – Hopebridge Autism Therapy Centers, Rise Autism, Harsha Autism Center and Journeys Autism Center – bolstering efforts to raise awareness of the need for more public health funding for autism services for Hoosier families who rely on Applied Behavioral Analysis (ABA) therapy.
My Autism Ally
My Autism Ally is happy to host another training with Gordon Homes, Financial Planner from Mass Mutual via Zoom on Thursday, February 23rd from 6:30-8pm and we will be addressing Special Needs Trusts. Gordon’s presentations are always very informative and well worth your time. The presentation will last about 45 minutes with plenty of time afterwards for questions.
HANDS in Autism
Dates for our 2023 virtual and/or on-site trainings are coming soon. But you do not have to wait – add your name to the waitlist for any/all trainings and be the first know!
HANDS in Autism
Start off 2023 with our virtual Small Groups designed for teenagers and young adults! This spring, we will discuss two main topics – Building a Stronger Body and Building a Happy & Healthy Mind.
Autism Society of Indiana
For many people, the New Year brings with it a renewed sense of opportunity. It is a time when many people are setting new goals for personal growth. Setting goals is also a significant part of any good treatment program that is based on Applied Behavior Analysis (ABA).
The Arc of Indiana E-Newsletter
Begin the new year with a new career! The Arc of Indiana is seeking a senior director of engagement to join The Arc Advocacy Network team! Interested, please reply! Know someone who would be great for this position, please share!
ARI Newsletter
Last month, we announced our 2022 ARI Autism Research Grant recipients. We thank our volunteers and Scientific Advisory Panel members for their dedicated support throughout the review and approval process. We look forward to exciting findings in the year to come.
The Arc of Indiana E-Newsletter
Carol-Anne and Don Hossler have always worked to help their son, Johnathon, achieve. When they were told by his teachers that they could never expect him to be able to work they took it upon themselves to keep him engaged in his community and build job skills by crafting a volunteer job for him. Each week, Johnathon picked up canned goods from his neighbors and delivered them to Monroe Community Kitchen. The program came to be known as “Handin-Hand.”
My Autism Ally
This group is for caregivers of those on the autism spectrum such as parents, grandparents, adult siblings or foster parents. The Allen County Autism Support Group is the longest continuously running autism support group in Northeast Indiana and is open to anyone who wants help with local resources, or advice from other autism parents who have “been there and done that”. Regardless of age, diagnosis or functioning level of your loved one on the spectrum, this group can help.
The Arc of Indiana E-Newsletter
The Arc of Indiana and Self-Advocates of Indiana congratulates all of our 2022 Impact Award recipients. It was wonderful to celebrate good people doing good thinks to make a difference in the lives of people with intellectual and developmental disabilities and their families.
The Arc of Indiana E-Newsletter
The Arc of Indiana & Self-Advocates of Indiana Virtual Conference & Impact Awards Celebration is just around the corner! Self-advocates, family members, and DSPs can attend at no cost, but registration is required. An email with your access links will be sent prior to the conference.
The Arc of Indiana E-Newsletter
Its getting closer! Register for our free virtual conference, taking place November 30, by Friday, November 18! While there is no cost to attend for self-advocates, family members, and DSPs, you do need to register and select the events you want to attend virtually. Zoom links will be sent to you closer to the conference date.
Autism Beacon
Lighthouse Autism Center is thrilled to announce that our building renovation at our South Bend center is now complete and ready for additional learners! The expansion of our clinic provides additional services to over 21 families and creates over 27 new jobs.
Autism Society of Indiana
“Autism is not a rubber stamp, blotting out one’s individual identity as if canceling a passport. Autistics, like the rest of the human race, deserve a culture where flourishing is possible.” Kate Gladstone, a member of the Autism Society of America’s Council of AutisticAdvisors, shares a personal account of systematic bullying and provides tips on how we can create a more accepting world for Autistic people.
FSSA is hosting bi-weekly webinars regarding the transition of the A&D Waiver to the H&W Waiver for individuals 59 years and younger, effective July 1, 2024. Each webinar will take place from 3:00-3:30 p.m. ET. Following are links to join a webinar and webinar recordings. Registration is not required.
Autism Parenting Magazine – Elopement Strategies for Autistic Individuals
Check out Scott Garner’s latest article in Autism Parenting Magazine. He shares his tips and tricks on how to manage or prevent an elopement situation if your autistic child wanders away.
Shamieh Law – ADHD And Driving
ADHD is a neurodevelopmental condition associated with inattention, hyperactivity, and impulsivity. These symptoms put ADHD teens and adults at heightened risk for motor vehicle crashes. Researchers have found that those with ADHD are more likely to become distracted, which leads to preventable car accidents. In the interest of public safety, Shamieh Law has compiled this guide to ADHD and driving.
Autism Parenting Magazine – Dealing with Sensory Issues in Public
Every parent with a child on the spectrum can vouch for me when I state, “going out in public is a challenge.” Transitioning from the house to the car is your first challenge. Then the challenge shifts to dealing with the sensory problems of the new place upon arrival.
Sensory Fun and Playroom
Christiane Rogers has a passion for working with children with disabilities. In fact, she’s a parent of a child with disabilities. When he was young, her son was diagnosed with Auditory Processing Disorder (APD) which causes a disruption in the way an individual’s brain understands what they’re hearing.
The Arc of Indiana
With changes coming to the Health & Wellness (currently Aged & Disabled) and TBI Waivers, many families have questions about Structured Family Caregiving (SFC). We hosted two Ask The Arc webinars to share information on this important issue.
Autism Research Institute
Today, advocates worldwide are observing World Autism Awareness Day, aimed at increasing knowledge about autism and encouraging early screening, diagnosis, and intervention. World Autism Awareness Day is also an opportunity for our community to bring important issues to the general public’s attention.
The Arc of Indiana
With changes coming to the Health & Wellness (currently Aged & Disabled) and TBI Waivers, many families have questions about Structured Family Caregiving (SFC). We have scheduled two Ask The Arc webinars to share information on this important issue.
Autism Society – 30 Days of Autism 2024
The Autism Society of Indiana invites you to #CelebrateDifferences during April’s Autism Acceptance Month!
The Arc of Indiana
Applications are now open for Erskine Green Training Institute’s Camp EGTI. The deadline to submit applications is May 1, 2024. Camp EGTI is a two-week camp for individuals 18-22. The focus is TRANSITION – improving skills to assist with the transition from school to adulthood.
Autism Society – 30 Days of Autism 2024
The Autism Society of Indiana invites you to #CelebrateDifferences during April’s Autism Acceptance Month!
The Arc of Indiana
March is Developmental Disabilities Awareness Month and we’re so excited to share it with you! The theme this year is A World of Opportunity. These may be opportunities for fun, opportunities for relationships, opportunities in education, opportunities for toddlers and infants, opportunities for activism and advocacy, opportunities for travel, opportunities in employment — they’re the opportunities to live your best life and to achieve your dreams! This is YOUR world — a world of opportunity!
Autism Parenting Magazine – Check Out This Upcoming Issue!
Be sure to watch for the upcoming March Issue of Autism Parenting Magazine, where Scott Garner from the Indiana Autism Alliance will be showcasing an insightful article on elopement and autism safety. Subscribe today to receive your copy of the magazine.
The Autism Beacon
Many children with autism experience challenges with social skills including communication, social interaction behaviors, emotional regulation, engagement, and simply meeting other peers with similar skills or interests. In order to better meet the social needs of our learners, Lighthouse is now offering social skills groups at select center locations including our Davenport, Clinton, North Liberty, and Marion centers (Iowa center locations).
The Arc of Indiana
Last week was a busy week at the Statehouse as we move into the latter half of the session. There are still rumblings about the legislative session ending a week early on March 8. There is a lot of work to do until then.
The Arc of Indiana
Discussions continue at the Statehouse and executive level about the December Medicaid forecast, the anticipated shortfall of nearly a billion dollars, and proposed changes to Medicaid Waivers. Many legislators are concerned about the proposed changes and want more transparency about why the shortfall happened and how the proposed changes will negatively impact families. We continue to work with all stakeholders to see what alternatives can be proposed.
HANDS in Autism
The HANDS 14th Annual Autism Art Expo is swiftly approaching, and we are currently accepting artwork from all those interested in submitting creations. This year’s event is scheduled for April 18th and 19th. Artists who would like their artwork to be considered as part of this year’s logo will need to have their submission to us no later than February 28th.
The Arc of Indiana
The passage of HB 1380 is a major victory for families whose students receive special education services. This bill places the burden of proof in due process hearings on the school rather than the parent. It also provides that schools cannot require that a parent or an emancipated student enter into a nondisclosure, nondisparagement, or confidentiality agreement.
Autism Society
Our mission at the Autism Society of Indiana is to create connections, empowering everyone in the Autism community with the resources needed to live fully. We are seeking enthusiastic individuals that would like to help us continue building community all throughout Indiana. Students, caregivers, family and friends of all ages are welcome to join.
My Autism Ally
We’re starting off 2024 with a training opportunity. Join us via Zoom as we learn more about SafeinHome’s Remote Support Services Grant Program. Paula LeMaster, regional consultant for SafeinHome, will be presenting on Thursday, January 11th from 6:30-8pm during the Allen County Autism Support Group meeting. She will be discussing their Remote Support Services Grant Program which has no financial impact on your waiver budget.
The Arc of Indiana
Last month, The Arc of Indiana and the Self-Advocates of Indiana held our annual Impact Awards Celebration. We are highlighting our fantastic award recipients over the next few weeks.
Autism Research Institute Newsletter
Rates of “school distress”—or significant emotional distress related to attending school—are significantly elevated in children with autism spectrum disorders (ASD), according to a new study from the United Kingdom.
HANDS in Autism E-Newsletter
To assist you in preparing for your next patient on the autism spectrum, we’ve compiled a useful resource that provides strategies for communication, addressing sensory issues, and facilitating medical procedures.
Arc of Indiana
Are you and your family up to date on vaccines? COVID, flu and RSV vaccinations are recommended! Find information and vaccine locations at coronavirus.in.gov/vaccine.
Arc of Indiana
If you or your child receives government benefits, including Medicaid, SNAP, and WIC, or your household income qualifies you, you can receive a discount of up to $30/month and a discount of up to $100 for a qualifying device.
Autism Research Institute
By providing access to cutting-edge research, this e-newsletter aims to empower healthcare professionals in their work with patients on the autism spectrum. Ultimately, it strives to improve the quality of care and support for both children and adults diagnosed with this condition.
Autism Society
In this issue of Capitol Connection, see an update on the continuing resolution that is headed for the President’s desk, new bills introduced related to respite care and education, $200 million in funding for housing announced, an opportunity to provide comments on sub minimum wages, and more.
The Autism Beacon
Lighthouse Autism Center is opening our first location in Omaha, Nebraska! Omaha is located on the Missouri River, close to the Iowa border. Our new center is preparing to open, early 2024 and will feature beautifully remodeled spaces to promote natural and play-based learning. Omaha Autism Center will provide services to over 25 families and create over 35 new jobs in the area. We cannot wait for you to see it!
CIP Application Deadline November 15th, 2023
We know that your family’s educational needs are of the utmost importance. Finding a place that “gets” your young adult can be a life-changing experience. As the year comes to an end, it’s time to take steps toward determining your future goals and plans.
Special Needs Living
Special Needs Living Magazine Parent & Caregiver Empowerment Day – Sat, Nov 11, 2023, 1-5 PM at White River Christian Church. You don’t have to be in a current transition but planning for a future transition can save you a lot of time and make for a smoother transition!
Indiana ACT for Families – Press Release October 2023
INDIANAPOLIS, IN – Today, Indiana ACT for Families released a detailed analysis that has found significant flaws in the methodology used by the Holcomb administration to justify the cuts to ABA Medicaid reimbursement rates.
Lighthouse – The Autism Beacon E-Newsletter
Lighthouse Autism Center is now offering autism evaluations for children 2-6 years old. Appointments are available at every Lighthouse location. Children with autism often show signs in infancy but may not be diagnosed until much later.
The Arc of Indiana
The Arc Master Trust will celebrate its 35th anniversary on October 24th and we’re taking a look back to share some of the trust’s history. Martha Perske was renowned for her pencil drawings of persons with disabilities that were used in books written by her husband, Robert Perske, a well-known disability rights advocate.
HANDS in Autism
Are you seeking ways to expand your awareness of valuable community resources while learning to connect with them for support? Our HANDS: Developmental Disabilities & Autism ECHO: Individuals & Caregivers Series, Circle of Support Sessions focuses on these topics and is available to:
Individuals with Developmental Disabilities
Community & Medical Providers/Professionals
Family Members & Caregivers
Educators
But they are beneficial for everyone!
Autism Parenting Magazine
In our December issue of Autism Parenting Magazine, we cover the topic of:
✅ Building Life & Social Skills
✅ Helping Kids Into Independent Living
✅ Autism Guardianship and Alternative Options
for children on the autism spectrum.
Lighthouse – The Autism Beacon E-Newsletter
After years of searching for a space to expand, Lighthouse Autism Center is pleased to announce a second location in Warsaw, IN located at 109 E Winona Ave in Warsaw, Indiana. Our Winona Lake center will feature beautifully remodeled spaces to promote natural and play-based learning. This expansion will provide additional services to over 25 families and create over 35 new jobs in the Warsaw area.
Indiana ACT for Families
This week, the Indiana ACT for Families coalition is delighted to feature Natasha Navas from Westfield, Indiana. She is a mother of a 6-year-old with Autism Spectrum Disorder (ASD) who was inspired to begin a career as a Registered Behavior Technician (RBT) for Applied Behavior Analysis (ABA) therapy after seeing her son’s dramatic improvement.
The Arc of Indiana E-Newsletter
We have been introducing our advocacy fellows over the past few weeks. Now, we are excited to announce the next phase of the Advocacy Leadership Network program. We need you!
National Autism Association
NAA’s programs provide tangible and meaningful resources directly to families, individuals, caregivers, clinicians, educators and first responders.
Psychology Today
‘If you had asked me at the time why I was making plans for autism testing, I wouldn’t have been able to give a truthful answer. I didn’t truly understand the reasons myself. Instead, I made up an excuse to tell people: “A correct diagnosis will help my bipolar disorder treatment.” Although true, it was not my driving motive.’
Autism Crisis Intervention Training Held For Law Enforcement in the Upstate
When experiencing a crisis, a person with autism may not react as expected. That’s the reason several law enforcement agencies attended a special intervention training in Spartanburg on Wednesday.
MetroHealth
A collaborative effort to improve the outcomes for youth with autism spectrum disorder (ASD) transitioning to adulthood has been awarded a total of $1 million over the next three years from the Cleveland Foundation. The grant will help to support the work of a three-year pilot in which The MetroHealth System, Autism Speaks and Milestones Autism Resources will partner to build a model of coordinated medical, behavioral and social transition planning that can be scaled and replicated in other locations, within Ohio and beyond.
CBS Indy News
More than five million adults in the U.S. have autism spectrum disorder, according to the CDC. It’s a life-long condition and for many adults will lead to on-going services and support. At the corner of 6th and Morton Street in Bloomington, you’ll find CIP or College Internship Program.
Lighthouse – The Autism Beacon
Lighthouse Autism Center is now offering autism evaluations for children 2-6 years old. Appointments are available at every Lighthouse location. Children with autism often show signs in infancy but may not be diagnosed until much later. Early signs of autism in babies or toddlers often go unrecognized, simply because parents or caregivers may not know what to look for. One of the most important things you can do for your child after birth is to learn the early signs of autism. Recognizing the initial signs of autism can lead to an earlier diagnosis which is needed for early autism intervention.
The Arc of Indiana E-Newsletter
The Arc of Indiana has launched a new program, the Advocacy Leadership Network, which will work to build a network of at least 200 people across the state to advocate for the issues important to people with intellectual and developmental disabilities and share their experience to make a positive difference in the lives of people with disabilities.
Autism Beacon
Each May, Better Hearing & Speech Month (BHSM) provides an opportunity to raise awareness about communication disorders and the role of ASHA members in providing life-altering treatment. For 2023, our theme is “Building a Strong Foundation.”
Special Needs Living June 2023 Issue
Join us this Summer for a variety of events. Check out our June issue to learn more about how you can get involved!
HANDS in Autism
Join us this Summer for a variety of events and online sessions! Get 50% off our Summer Intensive Training for School & Community Service Personnel. Use HANDS50 when registering to get this promotional offer! Don’t miss this special offer!
The Arc of Indiana E-Newsletter
Join us on Wednesday, May 17, 12:00 p.m. EST. for our next Talks with The Arc Trust webinar. We will be focusing on understanding income and resource limits to obtain or maintain government benefits, and how a special needs trust can help maintain benefits.
Register for this and future webinars at: Talks with The Arc Trust.
The Arc of Indiana E-Newsletter
Don’t miss our next Ask The Arc Webinar, Waiver Transition & Redesign Update, taking place Thursday, May 11, 6:00 p.m. EST. Cathy Robinson, associate director, Division of Disability and Rehabilitative Services, will share important information about upcoming changes to Indiana’s Medicaid Waiver program, including moving the Aged and Disabled Waiver from the Division of Aging to DDRS, for people under the age of 65.
Autism Science Month
Over the past decade, many studies have documented substantial impairments in the gastrointestinal (GI), immunological, and metabolic systems of individuals with autism. Although this is well known among researchers in the autism biomedical field, many other professionals have yet to acknowledge the high rate of these medical comorbidities.
Autism Parenting Magazine
A new study performed by the CDC has revealed that, in 2020, the overall ASD prevalence was 27.6 per 1,000 (one in 36) children aged 8 years and was 3.8 times as prevalent among boys as among girls. Not only were the latest statistics shocking in the sheer increase since the last study, they were also conducted in 2020 – a year when many services were shut down due to COVID-19.
A watershed moment…
It led us at Autism Parenting Magazine to dig deeper into the statistics and the demographics of the autism population.
Here is what we found:
31% are considered to have an intellectual disability.
25-35% children with autism are considered non verbal
38% have seizures
40% have anxiety
53% have sleep issues
49% are likely to engage in elopement (running away)
Are 4x more likely to suffer from Gastrointestinal issues
Are 40x more likely to die from preventable injuries
37% of caregivers use ABA
22% of caregivers have used CBD with their children
Most kids are diagnosed after the age of 4
Boys are four times as likely to be diagnosed than girls
Only 14% of adults with autism have paid jobs in a community setting
27% of autistic adults live in a group home
73% of families with autistic children reported that they would be more likely to travel if they could access more information about travel accommodations and resources for families with special needs
Here we are talking about a very diverse subsection of needs and characteristics from mainstream ABA therapy right through to nutritional supplements and sensory friendly spaces.
If you have products or services that can help the autism community address any of these challenges, please get in touch today to find out how we can help you reach our audience.
All the best.
Mark Blakey
Indiana ACT for Families
Indiana is a national leader in autism care, providing life-changing access to diagnostic and therapeutic care for children with Autism Spectrum Disorder (ASD). But families and providers are getting concerned that the Holcomb administration may soon cut Medicaid funding for ABA therapy – the most scientifically validated therapy for people with autism – as part of their plan to reduce Medicaid expenditures.
The Arc of Indiana E-Newsletter
Last week three of The Arc of Indiana’s priority bills passed unanimously out of committee. These bills now head to the Senate Appropriations Committee as each require state funding to implement. To learn more about these bills and what this means for our community, check out our E-Newsletter.
Autism Research Institute
With Autism Awareness Month approaching, ARI’s staff is busy working on a number of initiatives. These include sponsoring our annual, three-day in-person think tank, releasing an online program to help parents and professionals understand and support self-harming behaviors, and premiering ARI’s National Autism History Museum.
My Autism Ally
To celebrate Reading across America and Dr. Seuss’s birthday, we are once again partnering with Purdue Fort Wayne School of Education to host a sensory friendly Dr. Seuss Party and you are invited to be part of the fun! The focus of the event is to celebrate reading, have fun with crafts and games and get valuable information about resources in our community. This event is FREE . Join us on Sunday, March 19th at the Walb Student Union Classic Ballroom on the PFW campus- 2101 East Coliseum Boulevard Fort Wayne, IN 46805 .
The Arc of Indiana E-Newsletter
Our Talks with The Arc Trust webinar series takes place at noon on the third Wednesday of each month. Click here to register for our March 15th webinar where Sara discuss third party special needs trusts – trusts funded by someone other than the person who will be the beneficiary of the trust, like The Arc Master Trust I.
Indiana ACT for Families
The Indiana ACT for Families coalition added four new member organizations this month – Hopebridge Autism Therapy Centers, Rise Autism, Harsha Autism Center and Journeys Autism Center – bolstering efforts to raise awareness of the need for more public health funding for autism services for Hoosier families who rely on Applied Behavioral Analysis (ABA) therapy.
My Autism Ally
My Autism Ally is happy to host another training with Gordon Homes, Financial Planner from Mass Mutual via Zoom on Thursday, February 23rd from 6:30-8pm and we will be addressing Special Needs Trusts. Gordon’s presentations are always very informative and well worth your time. The presentation will last about 45 minutes with plenty of time afterwards for questions.
HANDS in Autism
Dates for our 2023 virtual and/or on-site trainings are coming soon. But you do not have to wait – add your name to the waitlist for any/all trainings and be the first know!
HANDS in Autism
Start off 2023 with our virtual Small Groups designed for teenagers and young adults! This spring, we will discuss two main topics – Building a Stronger Body and Building a Happy & Healthy Mind.
Autism Society of Indiana
For many people, the New Year brings with it a renewed sense of opportunity. It is a time when many people are setting new goals for personal growth. Setting goals is also a significant part of any good treatment program that is based on Applied Behavior Analysis (ABA).
The Arc of Indiana E-Newsletter
Begin the new year with a new career! The Arc of Indiana is seeking a senior director of engagement to join The Arc Advocacy Network team! Interested, please reply! Know someone who would be great for this position, please share!
ARI Newsletter
Last month, we announced our 2022 ARI Autism Research Grant recipients. We thank our volunteers and Scientific Advisory Panel members for their dedicated support throughout the review and approval process. We look forward to exciting findings in the year to come.
The Arc of Indiana E-Newsletter
Carol-Anne and Don Hossler have always worked to help their son, Johnathon, achieve. When they were told by his teachers that they could never expect him to be able to work they took it upon themselves to keep him engaged in his community and build job skills by crafting a volunteer job for him. Each week, Johnathon picked up canned goods from his neighbors and delivered them to Monroe Community Kitchen. The program came to be known as “Handin-Hand.”
My Autism Ally
This group is for caregivers of those on the autism spectrum such as parents, grandparents, adult siblings or foster parents. The Allen County Autism Support Group is the longest continuously running autism support group in Northeast Indiana and is open to anyone who wants help with local resources, or advice from other autism parents who have “been there and done that”. Regardless of age, diagnosis or functioning level of your loved one on the spectrum, this group can help.
The Arc of Indiana E-Newsletter
The Arc of Indiana and Self-Advocates of Indiana congratulates all of our 2022 Impact Award recipients. It was wonderful to celebrate good people doing good thinks to make a difference in the lives of people with intellectual and developmental disabilities and their families.
The Arc of Indiana E-Newsletter
The Arc of Indiana & Self-Advocates of Indiana Virtual Conference & Impact Awards Celebration is just around the corner! Self-advocates, family members, and DSPs can attend at no cost, but registration is required. An email with your access links will be sent prior to the conference.
The Arc of Indiana E-Newsletter
Its getting closer! Register for our free virtual conference, taking place November 30, by Friday, November 18! While there is no cost to attend for self-advocates, family members, and DSPs, you do need to register and select the events you want to attend virtually. Zoom links will be sent to you closer to the conference date.
Autism Beacon
Lighthouse Autism Center is thrilled to announce that our building renovation at our South Bend center is now complete and ready for additional learners! The expansion of our clinic provides additional services to over 21 families and creates over 27 new jobs.
Autism Society of Indiana
“Autism is not a rubber stamp, blotting out one’s individual identity as if canceling a passport. Autistics, like the rest of the human race, deserve a culture where flourishing is possible.” Kate Gladstone, a member of the Autism Society of America’s Council of AutisticAdvisors, shares a personal account of systematic bullying and provides tips on how we can create a more accepting world for Autistic people.
The Arc of Indiana
Reminder: FSSA announced in January that waiver members who receive attendant care provided by a legally responsible individual would need to transition to an alternative provider or to Structured Family Caregiving by July 1. In order to have new service plans approved by July 1, those plans must be developed with your care manager, who will then submit it to the state, by June 15.